Step Up for NUS1, Join Our Virtual Walkathon today!

On June 21st be apart of a global movement to make a difference! The NUS1 Foundation invites you to walk, run, or bike in our Virtual Walkathon, raising funds for research that brings hope to individuals and families affected by NUS1-related conditions.

Your donation to participate supports groundbreaking efforts led by Dr. Richard Steet at the Greenwood Genetic Center in South Carolina in collaboration with the University of Georgia. The two organizations are working together to put together a first of its kind drug repurposing screen for the NUS1 gene. This research could help identify a treatment already FDA approved that our loved ones could use immediately to ease symptoms without the costly steps and time involved in creating a whole new drug. The funding for this NUS1 research is only possible through donations.

Whether you join a team, create your own, or sponsor a participant, you’ll play an essential role in advancing this life-changing research. Together, we can inspire hope, drive progress, and make a meaningful impact on the NUS1 families worldwide.

Take your first step today—donate, join us, and move with purpose on June 21st. Together, we’ll walk toward a brighter future for our rare warriors!

SIGN ME UP!

What is a virtual walkathon?

A virtual walkathon lets you participate from anywhere by walking, running, biking, or any activity you choose to help raise funds for a cause. Join a team, create your own, or simply donate to support life-changing research—all at your own pace and location.

What is the walkathon raising money for?

The NUS1 Foundation is hoping to fund a drug repurposing study with Greenwood Genetic Center in collaboration with the University of Georgia. This critical study will screen over 2,000 drugs and supplements to find those that can boost NUS1 protein expression—a key step toward developing the first-ever treatment for NUS1 mutations. 100% of funds raised will go to funding this necessary research.

How do I participate?

It is easy to participate! Go to the walkathon link below and donate as a pledge to walk, run, or bike with an existing team. Your support helps them reach their fundraising goal. You can also show your support by sponsoring someone already participating, this is great option for businesses! If walking, running, or biking isn’t for you, you can still make a difference by donating directly to the cause.

I love someone with NUS1, can I create my own team in their honor for the walkthon?

Absolutely! We would love for you to join us by creating your own team in honor of your loved one. You can simply go to the link below and sign up by clicking the option "I want to help fundraise." There you can set up your own team in honor of your loved one and share it with your friends and family. You can also reach out to us at fundraising.nus1foundation@gmail.com and we can send you a PR packet to help run your campaign.